Sunday, May 2, 2010
Personal Information:
Since Turner syndrome usually distorts a girl’s physical looks, they may have low self-esteem or issues with dealing how their body looks. People with this disorder may have learning difficulties, especially in math. The good news is the majority is able to go to regular schooling and classes. They are generally able to learn well by hearing, write well, develop good language skills, and memorize information just as well as others.
If you have Turner syndrome, know it's not your fault for having physical and medical problems, but it's only a small part of your total physical, emotional, and intellectual self.
Here are a few suggestions that will help you cope:
-Join a support group for girls with Turner syndrome. You can ask your doctor or parents about more information, or go on http://www.dailystrength.org/c/Turner-Syndrome/support-group.
-Get plenty of exercise by staying active in sports or hobbies that you enjoy. There have been studies that have shown exercise can lower stress levels.
-Get out and do volunteer work. Helping other people can boost your self-esteem and your confidence too!
-Talk to a professional therapist if you continue to feel bad about yourself. Professional help can build yourself.
-esteem and confront your concerns about living with Turner syndrome. Discuss this with your parents if you think you need help.
-Write a journal or diary where you write down all you thoughts and feelings about the challenges you're dealing with.
-Be open with your parents or school counselor if you are having problems at school.
If you have a friend who has Turner syndrome, remember to respect her emotional and physical needs. She may not always feel comfortable talking about her condition, so make sure not to push her about talking about anything if they aren't comfortable about it. You can also support your friend more than you can imagine just by hanging out and doing things you enjoy together. Be a good listener if she turns to you for advice or comfort, and make sure to stick up for her because good friends only come once in a lifetime.
Since Turner syndrome is a condition that is caused by a chromosomal abnormality, there's no specific cure yet. Science is experimenting with DNA and chromosomes but we aren't that far in any genetic cures. Hopefully in the future there will be a cure for Turner syndrome and all other genetic diseases!
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